Ethics of Individual Participant Data Sharing

Patients expect to receive data and results in clinical trials as they do in other health care settings, but their expectations are often unmet. If this discrepancy doesn’t change, the clinical trial experience will increasingly frustrate and disappoint participants. 

We’re here to help! Download our latest article to help you think through critical considerations as a sponsor moving forward in sharing research data and results to participants, a practice that fosters trust and transparency.

Here’s what you’ll find in the article:

• 4 Ethical Benefits of Returning Data to Patients
• 4 Key Areas to Ensure Responsible Data Sharing with Patients
• 4 Strategies to Align Implementation with Ethical Principles

Leading sponsors have been collaborating on guidance documents, emerging best practices, and responsible methods of implementation. Our team of experts has been at the table since the beginning, focusing on how we can better meet the needs of participants before, during, and after clinical trials.

There is so much you can do without impacting the integrity of the trial. No longer is this uncharted territory. In fact, when you move forward with responsible data sharing, you become a sponsor of choice.

To download the full article on the Ethics of Individual Participant Data Sharing, complete the information below.

Follow Legacy Health Strategies on LinkedIn to stay tuned for the 3rd part of our Data Return Series, created in collaboration with ProofPilot’s Chief Strategy Officer Joseph Kim.